Monday, April 30, 2007
And prayed to God today
I asked "What makes a Mother?"
And I know I heard Him say:
"A Mother has a baby"
This we know is true
"But God, can you be a Mother,
When your baby's not with you?"
"Yes, you can," He replied
With confidence in His voice
"I give many women babies,
When they leave is not their choice.
Some I send for a lifetime,
And others for the day.
And some I send to feel your womb,
But there's no need to stay."
"I just don't understand this God
I want my baby here."
He took a deep breath and cleared His throat,
And then I saw the tear.
"I wish that I could show you,
What your child is doing today.
If you could see your child smile,
With all the other children and say...
'We go to Earth to learn our lessons,
Of love and life and fear.
My Mommy loved me oh so much,
I got to come straight here.
I feel so lucky to have a Mom,
Who had so much love for me.
I learned my lessons very quick,
My Mommy set me free.
I miss my Mommy oh so much,
But I visit her every day.
When she goes to sleep,
On her pillow's where I lay
I stroke her hair and kiss her cheek,
And whisper in her ear.
Mommy don't be sad today,
I'm your baby and I'm here.'
"So you see my dear sweet ones,
Your children are okay.
Your babies are born here in My home,
And this is where they'll stay.
They'll wait for you with Me,
Until your lesson's through.
And on the day that you come home
They'll be at the gates for you.
So now you see what makes a Mother,
It's the feeling in your heart
It's the love you had so much of
Right from the very start.
Though some on earth may not realize,
Until their time is done.
They'll be up here with Me one day
And know that you're the best mom!"
~Author Unknown
Tuesday, April 24, 2007
Jim wrote the message you can see in the collage. It was read at Sawyer's funeral, and we sent it to the NICU staff. Here is what it says:
The love of a parent is about doing anything you can for your child. But not all parents are medical professionals, and moms and dads need to sleep sometimes. The staff of the NICU are more than just nurses and doctors, they are the missing pieces: all the things a parents would be if they could.
From the moment he was conceived, we aimed to be the very best parents we could for Sawyer. We gave him all we could. The NICU staff provided those things we simply could not. They were our ears, listening for alarms in the night, and our eyes watching as he, and we slept. They were our hands, changing him, giving him the medicine he needed, moving him to ensure he was as comfortable as possible. And they made sure there was not a moment our boy did not know he was loved.
We want to thank them so very much for everything they did for Sawyer. Their efforts are part of our solace - knowing that his every ounce of fight was matched in equal measure by the doggedness, expertise and ingenuity of those caring for him.
Sunday, April 22, 2007
Saturday, April 21, 2007
Thursday, April 19, 2007
This is not at all how we thought it was supposed to be
We had so many plans for you we had so many dreams
And now you've gone away
And left us with the memories of your smile
And nothing we can say and nothing we can do
Can take away the pain the pain of losing you, but ...
We can cry with hope
We can say goodbye with hope
'Cause we know our goodbye is not the end, oh no
And we can grieve with hope
'Cause we believe with hope
(There's a place by God's grace)
There's a place where we'll see your face again
We'll see your face again
And never have I known anything so hard to understand
And never have I questioned more the wisdom of God's plan
But through the cloud of tears I see the Father's smile and say well done
And I imagine you where you wanted most to be
Seeing all your dreams come true
'Cause now you're home And now you're free, and ...
We have this hope as an anchor
'Cause we believe that everything God promised us is true, so ...
We wait with hope
And we ache with hope
We hold on with hope
We let go with hope
~S. Chapman
It's surprising to me how many people have reached out to us. Especially since some of the people who are the closest to us haven't said a word about Sawyer . . .not sorry, not we loved him, nothing. I know they did love him, and it's probably because it's hard for them that they aren't speaking . . . but they have no idea how much it would mean to Jim and I to hear that they are missing our son. That's why it's so incredible how many people have reached out to us with loving arms, people we've never even met, to tell us how sorry they are and how much Sawyer inspired them. I also find myself thinking of Brian too, and hoping that he isn't forgotten. They are both our boys, and both equally loved.
Thanks to all of you for reaching out. It means more than you could ever know.
Wednesday, April 18, 2007
Well, this sucks. It really does. I thought it was hard the first time I had to come home to an empty nursery, but this time it's even worse. Brian's death, to me, only made sense when I thought he was teaching us for next time. Now neither one makes sense and I have no direction. Every single thing reminds me of Sawyer . . .the stuff in the fridge that we bought because I wasn't supposed to be up for long periods of time when I was pregnant, so we got all kinds of snacky type stuff, microwave meals, and toaster waffles, stuff like that. All of his outfits . . .I keep thinking of them all the time, of him wearing them, of how hopeful we were when we picked them out. It feels like everywhere I go lately I see a dad with his 2 boys . . .that's the way things should be for us. People tell you not to get down or feel sorry for yourself, but I can't help it. I think I deserve to feel sorry for myself and my husband and all of our family. We needed Sawyer really badly, and even though I know he's okay, we're not. I miss him really, really bad.
I even miss going to the NICU. I started crying last night because I was eating Oreos and I remembered they had Oreo snack sticks in the NICU family room snack machine, and I was going to try them one day. I miss calling in the middle of the night to check up on him and make sure he's ok. I miss all the nurses and his doctors. But mostly, I miss him. I miss holding his hand, watching him wiggle, seeing his eyes open when I called to him. Every time we left, Jim and I gave him kisses to hold in the palm of his hand, so that if he got scared, he could just close his fist and feel our love. I miss doing that too.
People keep asking us where we're going from here . . .are we going to try again? Well, I don't know the answer to that. If we do try again, it will be years from now. I can't go through the loss (or even worry of loss) of another child. We are considering adoption in the future, but again, that will be at least a year or more. We had decided, after Sawyer was born, that we were not going to have any more of our own . . .he was enough. Now we don't know what we're going to do. We're not ready to stop thinking about our boys, and we're not emotionally able to move on yet. I'm also not going back to the daycare. How can I take care of other people's children when I can't even see my own? It breaks my heart.
I just keep cleaning the house. That's all I can think to do. Stay busy. I have gone over 48 hour stretches without sleep, then crash, then work some more. I have carried furniture by myself down 2 stories to the basment, moved around furniture . . .etc. That's aside from all the cleaning. I have converted the nursery into a craft/music/library room . . .along with memories of the 2 boys. It looks nice, but it still isn't the same without a crib and changing table and a baby to love.
Monday, April 16, 2007
Everybody's busy with their own situation
Everybody's lost in their own little world
Bottled up, hurry it up trying to make a dream come true
(They don't understand)
Everybody's living like there ain't no tomorrow
Maybe we should stop and take a little time
Cause you never really know what your neighbor's going through
(They don't understand)
Everybody's busy with their own situation
Everybody's lost in their own little world
Bottled up, hurry it up trying to make a dream come true
(They don't understand)
Everybody's living like there ain't no tomorrow
Maybe we should stop and take a little time
Cause you never really know what your neighbor's going through
(They don't understand)
Sunday, April 15, 2007
You can light a memorial candle for Sawyer James at http://rememberedbyus.com/SawyerRennie.
Thank you.
Saturday, April 14, 2007
Also, Jim and I have been getting so sick and tired of all the meaningless, ridiculous stuff people complain about . . .the price of gas, the way they had to wait in line at WalMart, their weight, their new haircut. I just don't get it anymore. I know I used to be that way, but after what we've been through, we can't do that anymore. We know what it's like to truly experience real grief and pain, and the little things don't seem so important anymore. Who cares if you're fat or thin in the face of losing your child?
I don't know. I just wanted to share these ideas tonight. Treat people with kindness. Don't sweat the small stuff. Don't freak out because someone is driving too slow, or you get cut off in traffic. Don't complain about stupid stuff. Just cherish life and the people you love, because you won't have them forever.
That's all.
Thursday, April 12, 2007
Amy, Jim, Brian, and Sawyer
Wednesday, April 11, 2007
Tuesday, April 10, 2007
His blood pressure is dangerously low again. His kidneys are not producing urine again. His swelling has not gone down--in fact, it is worse than ever before.
People have commented that they are amazed by how strong we have been through this. We are feeling weak tonight. We cannot leave our baby boy--we are on our way back to spend the night with him. We are very worried and it is devastating to watch your newborn baby suffer through all of this.
PLEASE PRAY TONIGHT! Sawyer needs our help.
Love,
Amy, Jim, Brian, and Sawyer
Monday, April 09, 2007
Sawyer is stable. He is not out of the woods yet, not by far. He is a very sick little boy--as the doctors say, he is still critically ill. However, they also keep telling us he is holding his own and fighting hard.
The goal now is to get him to remain stable, keep urinating, and get rid of all the fluid his body has retained. We already think he looks far less swollen, so that is a good thing. If they can get rid of that fluid, they will be able to put in his permanent line for medications and fluids. It's a critical time, because they need to get that put in!!! So please pray that he continues to get rid of the fluid in his body. They can also do surgery on him if they need to for his intestines.
Also, continue to pray for his perforated intestines. They do not know, and will not know for some time, the extent of the damage. However, the nurse practitioner told us tonight that he is not showing a high level of acid in his blood, which is one way they can tell there is a lot of damage--so again, this is a good sign.
It is scary, because the doctors often seem grim and offer very little hope. But we have faced those same conversations almost daily for 11 days now! I can't count how many times we have been prepared that he might not make it through the day. This shows us what a strong fighter our boy is. Everyone involved in his care has said how much he has surprised everyone. Keep praying that he will continue to surprise them and pull through this.
Also, every time Sawyer faces one of these trials, his brain could be affected. They do not know one way or the other. Only time will tell. Please pray that his brain will continue to develop normally and will not suffer for this trauma.
Oh--this evening he managed to extubate himself! He got his oxygen tube out--very, very scary sounding to mom and dad, but actually the nurses said he was fine and it wasn't a big deal. They managed to get some very handsome pictures of him after they re-intubated him, so we will scan them and blog them tomorrow.
Pray for Jim, because he has to keep working so that we will have money for Sawyer when he comes home. It is very hard on him, because he wants so badly to be with Sawyer, and it is awful to have to be at work instead. Then, by the time he gets home, he is exhausted and has to fight it to go be with Sawyer. Pray for me, also, because I have to face the doctors every morning without Jim, and hear the news myself. Thankfully, my mom is able to be with me if Jim is not, but it is still hard that he can't be there too.
Finally, a final prayer request is for the Monti family. A friend of mine from high school, Jennifer Monti, passed away this afternoon. She has been fighting for her life for many weeks in the same hospital where Sawyer is. She had gone in for a lung surgery, but her body suffered setback after setback, and finally she lost her earthly battle. Praise God her spiritual battle was won and she will never feel pain again. Please pray for her family--her parents, Mike and Sharon Whisenand, her brother Anthony, and her husband, Jon Monti. They need a lot of lifting up. Jennifer was only 32 years old.
Thank you all.
Love,
Jim, Amy, Brian, and Sawyer
Grandma and Grandpa Brown looking at Sawyer
Sunday, April 08, 2007
This morning we rushed to the hospital to meet with the surgeons. Sawyer's intestine has perforated. We were given the option of "letting him go." We were told that his chances of surviving exploratory surgery to see the extent of the damage were slim to none. However, were were also given the option of having the surgeon put in a drain to see if they could get rid of the fluid, buy him some more time to see if he remains stable enough to do potential surgery, and see if this shows the extent of the damage as well. If his intestinal perforation is small enough, it will heal on it's own.
The good news is that the surgery happened at 8:30ish this morning. We were told by both Dr. Ramiro (his head doctor) and the surgeon, Dr. Pearl, that the next 12-24 hours would show results, one way or the other. Either his stats would plummet or remain stable. They have, thus far, remained stable, and we are over 14 hours out. He is still producing adequate urine, and the drain is doing its job by getting rid of the "bad stuff" in his abdomen.
Our prayers are that he will continue to remain stable and improve, and that the intestinal perforation is small and will heal on its own. Please keep praying hard.
Also . . .thank you so much for your emails, cards, calls, and messages. I have not had much of a chance to respond to each of you individually. Please understand that I am not ignoring you--my husband and I read every one of your messages and they mean so much to us. When things settle down a bit, I will be able to more personally address each of you. For now, please don't think we aren't appreciative of your messages--they honestly mean SO much to us and help to keep us positive. Thank you so much.
Love,
Jim, Amy, Brian, and Sawyer
Saturday, April 07, 2007
Well . . .today is our first wedding anniversary. After nearly 48 hours without urine, our little boy gave us a wet diaper! There wasn't much, but it was there--the nurse weighed it twice to make sure! There was also a little bit in the catheter tube. AND he had a tiny bit of "stool." These are the things we have been praying our hearts out to God for, and he answered yet again. His other numbers/stats are looking very good. We could never have asked for more. Everyone kept asking us what we did for our anniversary . . .well, we are proud to say, we spent it with our son. Keep praying for his kidneys, liver, bowels, and lungs.
Happy Easter.
Love,
Jim, Amy, Brian, and Sawyer
See that yellow stuff in the tube? That's his little pee! :)
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Friday, April 06, 2007
Thank you all beyond measure.
Love,
Amy, Jim, Brian, and Sawyer
Thursday, April 05, 2007
Sawyer is still fighting. We are tired and in need of rest, so I will keep this brief, but keep praying for our little fighter. He is as "tough and rugged" as his name implies. We love him more every day, and every day miracles happen in his little body, so please pray with us that this will be a continuing pattern.
We read him goodnight tonight and last night . . .his Uncle Keith and Aunt Ashleigh (and little cousin Kyleigh) bought him "Love You Forever," so that was his story last night. Tonight I read him the Little Golden Book about God, and Jim read him "On the Day You Were Born." We also played "Blackbird" by the Beatles for him today, and put several items and pictures in his isolette so he would see and feel how much he is loved.
Mommy's Bedtime Story
Daddy's Bedtime Story
Sawyer's Isolette with pictures of the Beatles, mommy, daddy, and the whole family.
Wednesday, April 04, 2007
First of all, I am sorry I do not have time to write each of you individually. I promise I will do so when I can.
Sawyer had a rough day today. Earlier in the morning, the doctors were talking to Jim and I about decisions we might have to make about prolonging his life or letting him go. The main issue was his blood pressure, which dropped dangerously low. Then, when they used Dopamine to try to help him, his heart rate was racing, so they couldn't seem to find a balance. The doctors and nurses were all very grim and didn't seem to think he would last very long.
This all started at 9 a.m. when we arrived at the hospital. It is now 10:36, and for the past couple of hours, Sawyer's blood pressure has been back to normal. The doctors and nurses are now fairly certain he will hold stable through the night!
God does amazing things. Please, please . . .we know you are praying, but if you could, double your efforts. We know each day with our baby boy is a miracle, but we're not ready to let him go, and neither are the doctors. He keeps proving to everyone what a fighter he is, so we know he isn't ready to go either. He is so loved, and we know that God's amazing power can work through this little guy. His lungs are still a major issue. Even for a 24 weeker, they are weak, which is not good news. However, the doctors do feel that if they can get the balance right, he could heal. The problem is that they seem to be either over-inflating, which causes a risk of air pockets and blows, or under-inflating, which has caused some collapsed areas. They need to be able to find a balance, and it's been a struggle. So please keep praying, keep sending him your love . . .we know he feels it! He's an amazing, beautiful child.
Thank you all so much for everything!!
Love,
Jim, Amy, Brian, and Sawyer
Monday, April 02, 2007
Well, today certainly was an adventure, and I am moved to celebrate the extraordinary juggling skills of the NICU staff. Providing Sawyer with a safe environment for his continued growth, and the right answers to his physical challenges is like cooking five meals, on five stovetops for five different people who all want to eat at exactly five o'clock sharp. It's amazing. Anyway, thought it was time for a couple of pictures.
Sawyer at about 8:00PM on the day of his birth. That's Amy's finger in his hand.
Sawyer is such a brave little guy. He lay quietly while I took his temperature under his arm tonight, though wriggled furiously when I changed his diaper, which proves that he already possesses a keen sense of not wanting to show off his rude bits in brightly lit places. Quite right. I did okay though!
Also, a real surprise, and treat for us today: Sawyer opened his eyes for the first time.
Sunday, April 01, 2007
Just to let everyone know that Sawyer James Rennie, our son, was born on Saturday March 31st 2007 at 2:43PM at OSF Saint Francis Medical Center in Peoria. He weighed 1lb 9ozs, ansd was 16 weeks and 1 day premature. He is currently in the Neonatal Intensive Care Unit (NICU!) where he is doing extremely well, and beginning his new adventure in life with great courage and strength.
He is the most beautiful baby, and fighting very hard to continue to grow and stay strong. Any prayers and good wishes would help him tremendously - we are telling him lots how very much he is loved.
Amy is doing very well, and is already up and around, and feeling strong. We are both proud beyond words. :)
Love to you all!
Jim, Amy, and Sawyer